Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Read more
Glioblastoma is too often put in the ‘too difficult’ box. Survival rates have remained virtually the same for decades. We need more research, more urgency and more attention NOW.
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
13,000
PEOPLE ARE DIAGNOSED WITH GLIOBLASTOMA IN THE US EACH YEAR
5%
FIVE-YEAR SURVIVAL RATE
JUST
5%
OF RESEARCH FUNDING APPLICATIONS SUCCEED
ADVOCATING FOR GBM
GBM receives too little attention and resources. A big part of what OurBrainBank does involves patient advocacy and raising awareness for GBM.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
Through our patient-centred advocacy, we hope to inspire institutional, financial, medical and regulatory reform. Our GBM Bill of Rights, developed by those affected by GBM, is designed to empower people and inspire them to call for a better approach to GBM care.
Together with our allies and partners in other GBM and brain tumor organisations, we know that we are stronger together than apart. If we join forces we can ensure people with GBM have their voices heard.
TARGETED CAMPAIGNS
OBB plans to focus on each one of the points flagged up in the GBM Bill of Rights and push for its fulfilment. We will not rest until we see improvements in each of the 11 rights.
LATEST NEWS.
Help us spread the word about disparities in GBM care
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
Glioblastoma Awareness Day: July 17, 2024
Glioblastoma Awareness Day: Help us spread the word about GBM.
LATEST NEWS.
Two substantial health reports are released today in the UK.
Two substantial health reports are out today in the UK.
Help us spread the word about disparities in GBM care
Our survey showed serious disparities in GBM care across the USA. Let’s tell the country and make change!
OBB working with a group of brain tumour charities and a non-profit to ensure that patients have timely access to innovative treatments
We have been collaborating in the UK with a group of brain tumour charities and a non-profit organisation to ensure that patients have timely access to innovative treatments.
“The Stars Will Still Be There: What my daughter taught me about love, life and loss” — memoir by OurBrainBank board member Nicola Nuttall
Nicola Nuttall writes movingly about her daughter Laura who lived an incredible vivid life even after being diagnosed with glioblastoma.
Glioblastoma Awareness Day: July 17, 2024
Glioblastoma Awareness Day: Help us spread the word about GBM.
